It can be very embarrassing to have a gastrointestinal disorder that may lead to frequent trips to the bathroom but something happens on the way to getting to one in public.
The effort is spearheaded by Allie and Jonna Crocker and their 'Fighting H.A.R.D. (Having A Rare Disease) Foundation which raises money and support for those battling a rare disease.
The Fighting H.A.R.D. (Having A Rare Disease) Foundation is holding a Golf Fundraiser on August 10 at Pebble Creek Golf Club in Colts Neck and you are invited.
You may have seen or heard their story by now, but it's worth revisiting over and over again because their mission is that important and they are that inspiring.
Having a rare disease can come with expensive medical bills or families diverting money to pay those bills and trying to figure out how to pay for other necessities.
A bill introduced by Ocean County Assemblyman Ron Dancer which would create a Rare Disease Advisory Council has just advanced through an Assembly Panel.