Volleyball in Manasquan to Raise $$ for Boy’s Deadly Disease

A Manasquan High School senior named Camryn hopes to raise both money and awareness for a fatal disease in order to help her young cousin from Shark River Hills.

This is MHS's first ever Girl's Volleyball tournament fundraiser and it takes place on Tuesday, Nov. 12th in the MHS gym. Doors open at 5 pm. Tickets will be sold at the door for $5 each, and light refreshments will be sold as well. You're invited to come cheer on the teams and make a donation.

MHS students will contribute $5 each to play. (To register, email cmchugh@manasquan.k12.nj.us) The winning team will then play against the MHS Lady Warriors Volleyball team. The games begin at 5:30 pm.

Proceeds go to Luke's Helping Hand.

Anita Rothery, mom of Camryn, wants you to know what this event, and fundraisers like it, mean to her family. She writes:

"My nephew Luke was diagnosed at the age of 4 with the fatal and rare disease Duchenne Muscular Dystrophy. He is now 11 and losing his mobility. Luke lives in Shark Rive Hills with his parents and 2 younger brothers.

My daughter Camryn Rothery (Luke's cousin) is a senior at MHS and plays varsity basketball. Before that she was varsity captain for Manasquan's first ever girls' volleyball team. Camryn approached Head Coach McHugh about doing a fundraiser to bring awareness to Duchenne Muscular Dystrophy, as well as bringing community awareness to the girls' volleyball team.

Camryn was 11-years-old when she learned about Luke's fatal disease. She has witnessed the toll it is taking on her cousin (she considers him her hero.) It has been devastating for the family. Each year since 8th grade, Camryn has created videos for Luke's Helping Hand fundraisers but this year, as a senior, she wanted to bring more awareness to this fatal disease.

Families that have a child or sometimes 2 children with Duchenne have to pay for medication and equipment like a chairlift, elevator, motorized bikes, wheelchairs, electric lifts, etc. that are not covered by insurance.

We are hoping to get the community to come and cheer on the MHS students, support the new volleyball team, and bring awareness to Duchenne Muscular Dystrophy."