Julian is a 13-year old who was very active in flag football, baseball, and basketball. Now he can no longer play those sports. Here's why, and how you can help.

Julian is 13 years old and goes to Brielle Elementary School. During a sports physical, the Nurse Practitioner heard a heart murmur, so he was taken to a pediatric cardiologist who referred Julian to Children's Hospital of Philadelphia (CHOP).

After several visits and multiple tests, the doctors at CHOP diagnosed him with hypertrophic obstructive cardiomyopathy (HOCM). The main concern with HOCM is sudden cardiac death.

Now Julian's activities are restricted, and while early detection is important to prevent a sudden tragedy, there is no cure for HOCM. Living with this diagnosis is a physical and emotional challenge.

Now Julian's mom, Amanda, says they are on a journey of faith, and hope that more research and medical advances will find a cure.

Amanda is also working with Big Hearts to Little Hearts (BH2LH) to make the public aware of where Automated External Defibrillators (AEDs) are located in public places and to education the public on CPR in case you are ever faced with having to save a life.

You're invited to an event to benefit pediatric cardiac research and care that will take place next Saturday night, March 4th, from 6 - 10 pm at the Manasquan Elks Lodge on Stockton Lake Boulevard.

The Gala Celebration will feature dining, cocktails, live music, dancing, gift and silent auctions, and  50/50. Tickets are $60 per person but are going quickly.

Since it began, BH2LH has donated $1,000,000 to congenital heart disease research and education related to treatments and a cure -- all because of the generosity of our community and your support of events like this.

To purchase Gala tickets, please call 732-773-4463 or CLICK HERE!



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